Policy & advocacy

What if national level policies could go further to improve the lives of people affected by leukaemia? At Leukaemia UK we are determined to make sure this happens.

Share your views

By sharing your experiences and insights with us in this critical election year, you can help play a vital role in influencing key decision-makers in the NHS and governments across the UK. Please take a few minutes to fill in our short, anonymous survey and help us demand better for those affected by leukaemia.

Fill in our survey

What do we do?

Our policy and advocacy work is based on demanding better for those affected by leukaemia and related conditions – no matter who or where they are in the UK.

We work to understand key challenges facing patients, to develop solutions, and to encourage those responsible to implement these solutions.

We listen and we elevate

We are determined to place the voices of patients and their loved ones at the heart of what we do.

We understand that those who have experienced the impact of leukaemia, or a related condition, have a wealth of skills and experience. This insight can help us in our efforts to shape policy.

Patient Advocacy

Our Patient Experience Advisory Panel allows us to listen to the priorities of patients. It helps us to understand – from their experience – what decision makers should be doing to address challenges and spread good practice.

You can find out more about the Panel, including information on how to join, at the bottom of this page.

We collaborate

As well as engaging with those making national level decisions we collaborate with other charities.

This allows us to understand the best possible solutions to problems facing the leukaemia and wider cancer community. And to bring collective recommendations to policy makers.

The Blood Cancer Alliance

As a member of the Blood Cancer Alliance, we work with 14 other charities to tackle the issues all blood cancer patients face. We also work to improve the experience and outcomes of all those living with blood cancer, including those with leukaemia.

Cancer 52

We are a member of Cancer52. Cancer 52 is a national policy and campaigning charity of over 100 small charities that represent less common and rarer cancers. Although less common, these cancers account for more than half of all cancer deaths in the UK. The aim of Cancer 52 is to promote improved diagnosis, treatment and support for those affected by rare and less common cancers.


There are at least 500,000 people in the UK who are immunocompromised. We are proud to be collaborating with several other charities in efforts to ensure their needs are met and to protect them from Covid 19. You can find out more about some of our work in this area.

Join us in demanding better for our community

There are several ways you can become involved in our policy and advocacy activity.

If you or a loved one has experience of leukaemia or a related condition you can join our Patient Experience Advisory Panel.

You can also follow us on Twitter, where we share news and information relevant to our work.


Leukaemia UK’s vision is to stop leukaemia from devastating life. Saving and improving the lives of those affected by leukaemia and shining a light on the issues they face is at the heart of what we do. Leukaemia UK complies with all electoral law and regulations, and we’re committed to conducting our activity in a way that’s politically impartial.

See our recent policy and advocacy activity

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Latest Stories

Ciaran and Denise’s journey to Dragons’ Den

28 March 2024 Patient

Ciaran and Denise’s journey to Dragons’ Den

Ciaran Byrne’s leukaemia developed at a time when his life couldn’t have been going better. Before he jetted off on his honeymoon, Ciaran started to feel unwell.   

My noon, my midnight, my talk, my song 

26 March 2024 Patient

My noon, my midnight, my talk, my song 

Malcolm and Ruth’s life together was filled with adventure, activity and friendships, much of it focused on rowing and boats and their love of being on the water. Read their story.

Fundraising as a way to turn a “rubbish situation into something positive”

20 March 2024 Patient

Fundraising as a way to turn a “rubbish situation into something positive”

Watching his father-in-law’s shock at his leukaemia diagnosis and the gruelling treatment he underwent has inspired James Ingham to run the London Marathon for Leukaemia UK.