Policy & advocacy
What if national level policies could go further to improve the lives of people affected by leukaemia? At Leukaemia UK we are determined to make sure this happens.
What do we do?
Our policy and advocacy work is based on demanding better for those affected by leukaemia and related conditions – no matter who or where they are in the UK.
We work to understand key challenges facing patients, to develop solutions, and to encourage those responsible to implement these solutions.
We listen and we elevate
We are determined to place the voices of patients and their loved ones at the heart of what we do.
We understand that those who have experienced the impact of leukaemia, or a related condition, have a wealth of skills and experience. This insight can help us in our efforts to shape policy.
Our Patient Experience Advisory Panel allows us to listen to the priorities of patients. It helps us to understand – from their experience – what decision makers should be doing to address challenges and spread good practice.
You can find out more about the Panel, including information on how to join, at the bottom of this page.
As well as engaging with those making national level decisions we collaborate with other charities.
This allows us to understand the best possible solutions to problems facing the leukaemia and wider cancer community. And to bring collective recommendations to policy makers.
As a member of the Blood Cancer Alliance, we work with 14 other charities to tackle the issues all blood cancer patients face. We also work to improve the experience and outcomes of all those living with blood cancer, including those with leukaemia.
We are a member of Cancer52. Cancer 52 is a national policy and campaigning charity of over 100 small charities that represent less common and rarer cancers. Although less common, these cancers account for more than half of all cancer deaths in the UK. The aim of Cancer 52 is to promote improved diagnosis, treatment and support for those affected by rare and less common cancers.
There are at least 500,000 people in the UK who are immunocompromised. We are proud to be collaborating with several other charities in efforts to ensure their needs are met and to protect them from Covid 19. You can find out more about some of our work in this area.
Join us in demanding better for our community
There are several ways you can become involved in our policy and advocacy activity.
If you or a loved one has experience of leukaemia or a related condition you can join our Patient Experience Advisory Panel.
You can also follow us on Twitter, where we share news and information relevant to our work.
16 November 2023 Fundraising
A mum on a mission – how fundraising helped us in the darkest days of diagnosis
Leukaemia UK is proud to introduce its newest Ambassador, the children’s author Hannah Peckham. One year after her little son Bodhi was diagnosed with leukaemia, the brave mum shares how that devastating diagnosis turned her to community fundraising.
10 November 2023 Patient
Forced to go to the GP by Mum: Joe’s CML story
In 2023, Joe Medcalf was diagnosed with CML. His mum Catherine worked in clinical trials for 11 years and she never thought that one day her own son would benefit so much from a new drug treatment.
9 November 2023 Patient
Elaine’s ALL journey from shock to remission
Elaine battled mysterious tiredness and other symptoms for weeks, but doctors said nothing was wrong. Then she discovered she had ALL.