Policy & advocacy

What if national level policies could go further to improve the lives of people affected by leukaemia? At Leukaemia UK we are determined to make sure this happens.

What do we do?

Our policy and advocacy work is based on demanding better for those affected by leukaemia and related conditions – no matter who or where they are in the UK.

We work to understand key challenges facing patients, to develop solutions, and to encourage those responsible to implement these solutions.

We listen and we elevate

We are determined to place the voices of patients and their loved ones at the heart of what we do.

We understand that those who have experienced the impact of leukaemia, or a related condition, have a wealth of skills and experience. This insight can help us in our efforts to shape policy.

Patient Advocacy

Our Patient Experience Advisory Panel allows us to listen to the priorities of patients. It helps us to understand – from their experience – what decision makers should be doing to address challenges and spread good practice.

You can find out more about the Panel, including information on how to join, at the bottom of this page.

Demand better for those with leukaemia

We are asking the government to save and improve more lives affected by leukaemia, by publishing a cancer strategy within its first year to save and improve the lives of those affected by leukaemia.

Find out more

We collaborate

As well as engaging with those making national level decisions we collaborate with other charities.

This allows us to understand the best possible solutions to problems facing the leukaemia and wider cancer community. And to bring collective recommendations to policy makers.

The Blood Cancer Alliance

As a member of the Blood Cancer Alliance, we work with 14 other charities to tackle the issues all blood cancer patients face. We also work to improve the experience and outcomes of all those living with blood cancer, including those with leukaemia.

Cancer 52

We are a member of Cancer52. Cancer 52 is a national policy and campaigning charity of over 100 small charities that represent less common and rarer cancers. Although less common, these cancers account for more than half of all cancer deaths in the UK. The aim of Cancer 52 is to promote improved diagnosis, treatment and support for those affected by rare and less common cancers.

#TheForgotten500k

There are at least 500,000 people in the UK who are immunocompromised. We are proud to be collaborating with several other charities in efforts to ensure their needs are met and to protect them from Covid 19. You can find out more about some of our work in this area.

Join us in demanding better for our community

There are several ways you can become involved in our policy and advocacy activity.

If you or a loved one has experience of leukaemia or a related condition you can join our Patient Experience Advisory Panel.

You can also follow us on Twitter, where we share news and information relevant to our work.

 

Leukaemia UK’s vision is to stop leukaemia from devastating life. Saving and improving the lives of those affected by leukaemia and shining a light on the issues they face is at the heart of what we do. Leukaemia UK complies with all electoral law and regulations, and we’re committed to conducting our activity in a way that’s politically impartial.

See our recent policy and advocacy activity

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Latest Stories

Adjusting to a ‘strange new normal’

16 July 2024 Patient

Adjusting to a ‘strange new normal’

Opie Jones’ leukaemia treatment has created a huge legacy. His mum Lucy Ellerker-Jones and her husband Lewis have set up a foundation to help families and carers access mental health support while their children are going through cancer treatment.

Looking at life differently: Hugh’s CLL story

15 July 2024 Patient

Looking at life differently: Hugh’s CLL story

Leukaemia UK Community Champion Hugh Pender’s leukaemia diagnosis came about in unusual circumstances due to a totally unrelated condition.

A new era for the UK must bring real and recognisable change for people with leukaemia

9 July 2024 Policy

A new era for the UK must bring real and recognisable change for people with leukaemia

The swearing in of our newly elected MPs, and the start of a Labour government administration, marks a fresh chapter in UK politics. It’s essential that health, healthcare and the much-needed rejuvenation of the NHS are top priorities.