Share your story

We want to help people tell and share the leukaemia stories that matter – stories like yours.

The experiences of leukaemia patients are at the heart of all we do. Sharing your story stories helps us get our message across about the power of research to stop leukaemia devastating lives.

You’ll see them across our website, on social media, in newspapers and on TV, in our emails, and also in our fundraising, policy and campaigning work.

Your story is unique to you and powerful in helping others on their journey. Whether it’s your experience or an experience with a loved one’s leukaemia. 

Hello! I’m Janet

I’ve helped dozens of people tell their leukaemia story. It’s been an honour to listen to the resilience of our Leukaemia UK storytellers, whether their journey has ultimately ended with their own recovery or the loss of a loved one. Without their generosity we wouldn’t be able to drive our mission forward to fund research into kinder, more effective treatments. Your experience will help others feel they’re not alone.

How we’ll support you

  • You don’t need to be an expert writer or storyteller. We will guide you every step of the way. 
  • Nor do you need to know the medical detail behind your leukaemia – we will check everything to make sure it’s correct. 
  • There’s no rush or pressure. You can take as long as you like or stop at any point. We know that going through the details again can be very upsetting even if it was a long time ago. 
  • We keep it simple. Our consent form helps you understand where your story might be shared. We then capture your story with a combination of a step-by-step follow-up form and a chat on the phone. We’ll also need photos from you to build up a picture of you or your loved one’s life. 
  • We want you to be completely happy with what we write. We send you the draft of the story to amend as much as you like.  
  • You remain fully in control of how we share your story. We check back in with you again every time we want to use it. 

Share your story

Fill out this short form and we’ll be in touch.

The process of sharing my personal leukaemia story with Leukaemia UK was quick and easy. The discussion was done with great sensitivity and I actually found it therapeutic as it reminded me just how far I had come on my own recovery journey. I really valued the clear communication and the total control that I had. If you have a story to tell, I would encourage anyone to do so – it may help someone in similar circumstances one day.

Stephen Hughes

One of our storyteller’s who overcame APL and ran the 2024 London Marathon for Leukaemia UK

Latest stories

A Second Chance at Life

19 June 2026 Patient

A Second Chance at Life

For patients with blood cancer such as leukaemia, a stem cell transplant can offer the chance of a cure. But when a transplant fails or the disease returns, some patients may need a second transplant to have hope of long-term survival. Despite advances in transplant medicine, an NHS England policy introduced in 2017 continues to restrict access to second stem cell transplants based on a rigid ’12-month rule’.
In this blog series, we explore why the policy is under review, how treatment outcomes have changed over the last decade, and why charities including Leukaemia UK, Anthony Nolan and DKMS are calling for a more personalised, evidence-based approach to care.

Highlights from EHA 2026

18 June 2026 Research

Highlights from EHA 2026

The European Haematology Association (EHA) Congress once again brought together researchers, clinicians, patient advocates and industry leaders from across the world to share the latest advances in blood cancer research and care. From promising new targeted therapies and advances in monitoring disease progression / relapse to increasing recognition of the patient voice in research and healthcare decision-making, EHA 2026 demonstrated how rapidly the leukaemia landscape continues to evolve.

For Leukaemia UK, it was encouraging to see so many members of our research community presenting their work, leading scientific discussions and helping shape the future direction of leukaemia research.

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4 June 2026 Patient

You get told about GvHD but you don’t realise it can be this severe.

“Everything happened so fast. We were both just so shocked I don’t think we knew what to say to each other for the first time in our lives.”  Tarun Ramjeeawon survived his…