Leukaemia UK is committed to championing advancements in better treatments and care for all. We want to ensure the needs of patients are at the heart of everything we do, and that the voices of people affected by leukaemia and related conditions are being heard. 

That is why we are setting up a Patient Experience Advisory Panel - to bring the voices of those who have experienced leukaemia to decision-makers in the UK Government and elsewhere and to advocate that every patient has access to the best available therapies. 

To do this, we need your help! If you or someone close to you has lived experience of leukaemia or a related condition and you would be interested in participating, please get in touch. 

We hope that together we can help to explain to decision-makers what is needed to improve the lives of people living with leukaemia and related disorders and highlight the issues faced by these patients and their families. 

You will have the opportunity to share your experience, listen to the experiences of others, and feedback on some of our work. No prior knowledge or skills are necessary and we hope that this will be a rewarding opportunity where you can share your experience in a supportive atmosphere. Your insight and opinions will enable us to continue to focus on what matters most to those who receive a leukaemia or related diagnosis. 

If you would like to be involved or if you have any questions, please contact us at [email protected], using the subject line “Patient Experience” by Monday 2nd May 2022. We look forward to hearing from you! 

You can also download the full role description.

Our commitment to you 

  • We will ensure your participation in the panel is meaningful and put to good use in the work and activity of Leukaemia UK.  
  • We will always put your wellbeing first and understand if you need to take a break or more distant role from the panel in the future. 
  • We will work with you to develop ways of working that enhance your participation.