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Thank you for letting us know you’d like to share your story.

We will be in touch with you soon. In the meantime, why not take a look through the stories we have live at the moment.

Just some of our stories…

Jody’s story: “Without treatment I only had two weeks to live”

5 February 2026 Patient

Jody’s story: “Without treatment I only had two weeks to live”

Like many 17-year-olds, Jody White spent the summer between school and sixth form falling in love with his first proper girlfriend and hanging out with his friends. Autumn saw the start of A Levels at college in Bridgnorth, Shropshire. During this…

“I used to go at 1000 miles an hour and this has been a crazy shift from one life to another.”

15 January 2026 Patient

“I used to go at 1000 miles an hour and this has been a crazy shift from one life to another.”

Mooni’s symptoms began in winter 2022 with major fatigue and noticeably pale skin. At the time he was working between 12 and 16 hours a day running his restaurant, catering…

Andrew’s attitude and position from the word go was to ‘give back’ and help others.

14 January 2026 Patient

Andrew’s attitude and position from the word go was to ‘give back’ and help others.

At the time he was diagnosed in November 2017, Andrew Fairweather was a fit 33-year-old man who worked for a facilities management company and had a passion for fundraising for…